Can deep brain stimulation bring hope to a child? You bet!
by cookchildrens on Aug 30, 2012 at 1:07 PM | SHARE ON FACEBOOK 2 Comments
Imagine a 9 year old girl with dystonia—a neurological movement disorder— whose condition was so extreme she was unable to walk. Now imagine a leading-edge neurological treatment that could help to restore some of her movement. DBS (deep brain stimulation), a surgical treatment involving the implantation of a medical device called a brain pacemaker, which sends electrical impulses to specific parts of the brain. The surgery is performed while the child is awake. DBS is not a cure for dystonia, but is a treatment that can improve the child’s mobility.
Prior to the surgery, Kiera’s neurologist, Dr. Aalbers, let the family and Kiera know that, even with the surgery, her dystonia was so severe she would probably never walk again. Kiera, however disagreed. In fact, she was so sure that she would walk again, she made a bet with Dr. Aalbers that if post-surgery, she did in fact walk again, Dr. Aalbers would have to shave his head.
On April 11, 2012, the surgery was performed. Fast forward a few months and…you guessed it, she is now WALKING—and definitely holding Dr. Aalbers to his word. Not only is he getting his head shaved but, right now, as we post, she is shaving it for him. Is Dr. Aalbers happy about paying up? You bet. This is one wager where everyone wins.
Dr. Aalbers loses his hair:
If you would like more information on deep brain stimulation (DBS), please click here.



2 comments
Lea says:
Nov 20, 2012
Hello my name is Lea and I have daughter that has dystonia and she was walking four years ago and now she is in a wheelchair and the dystonia has taken over her body..She had a spinal fusion done this year and has been on every medication know to man to help control the dystonia,but it has only helped very little and now the doctors want to do the DBS…I am a little scared and not sure if this is what I want for her..I know that the dystonia is not going away she is only twelve and I feel like this disorder is stealing her childhood…I would love to speak to you and you can email me @ lea_p_2001@yahoo.com…Please and thank you…
jeffcalaway says:
Nov 21, 2012
Lea, thank you for your reply. Dr. Aalbers has sent you an email.